Quality of life in people with severe and very severe disability

Authors

DOI:

https://doi.org/10.14198/DCN.2017.4.1.03

Keywords:

Disability, Risk Factor, Family Medicine, Health, Quality of Life

Abstract

In our country people with disabilities constitute a priority group of comprehensive care aimed at improving their quality of life, which is influenced by several factors; the objective of this study is to establish the relationship that exists between the quality of life and the grade of disability of people with disabilities in the province of Loja for which a descriptive, analytical cross-sectional study was designed with a sample of 397 people with Severe and very serious disability in the province of Loja, selected by stratified random sampling. The measurement was made through the quality of life scale for people with disabilities GENCAT and for the degree of disability was verified the disability card. Data were analyzed from proportions (univariate analysis), through X² to measure association power, p value for significance to statistical relationships (bivariate analysis), and OR to measure risk. The results show a prevalence of poor quality of life of 68.78% (95% CI), higher in very severe disability (72.66%) and good quality of life (31.23% (95% CI) highter in the Severe disability 41.66%. When we related these two variables we found a statistically significant association (p = .006) and with respect to risk, the higher the degree of disability, the greater the risk of poor quality of life.

Funding

Estudio auspiciado por el Programa de Postgrado de Medicina Familiar y Comunitaria de la Universidad Nacional de Loja, en convenio con el Ministerio de Salud Pública del Ecuador y financiado por el Banco Interamericano de Desarrollo.

References

Schalock RL, Verdugo MA. El concepto de calidad de vida en los servicios y apoyo para personas con discapacidad intelectual. Revista española sobre discapacidad intellectual 2007; 4 (224).

Cardona Arias JA, Higuita-Gutiérrez LF. Aplicaciones de un instrumento diseñado por la OMS para la evaluación de la calidad de vida. Rev Cub Salud Pública 2014; 40(2): 175-189.

Verdugo M., Arias B, Gómez L, Schalock R, Escala GENCAT, Manual de aplicación, validación.Departamento de Acción Social y Ciudadanía de la Generalitat de Catalunya Barcelona. Enero 2009 (http://inico.usal.es/documentos/EscalaGencatManualCAST.pdf).

Urzúa M, Verdugo Alfonso M. Calidad de vida relacionada con la salud: Elementos conceptuales. Rev med Chil 2010; 138(3): 358-365. doi: https://doi.org/10.4067/S0034-98872010000300017

Wehmeyer ML, Abery BH, Zhang D, Ward K, Willis D, Hossain WA et al. Personal self-determination and moderating variables that impact efforts to promote self-determination. Exceptionality 2011;19(1):19-30. doi: https://doi.org/10.1080/09362835.2011.537225

Córdoba Andrade L, Gómez Benito J, Verdugo Alonso MA. Calidad de vida familiar en personas con discapacidad: un análisis comparativo. Universitas Psychologica 2008; 7(2): 369-383.

Arellano A, Peralta F. Calidad de vida y autodeterminación en personas con discapacidad. Valoración de los padres. Revista Iberoamericana de Educación 2013; (63):145-160. doi: https://doi.org/10.35362/rie630561

Hierro, I. et al. Evaluación de la calidad de vida en personas con discapacidades significativas: aplicación de la Escala San Martín en la Fundación Obra San Martín. Revista Española de Discapacidad 2015; 3 (1): 93-105. doi: https://doi.org/10.5569/2340-5104.03.01.05

González S, Tello J, Silva P, Lüders C, Butelmann S, Fristch R et al. Calidad de vida en pacientes con discapacidad motora según factores sociodemográficos y salud mental. Rev Chil neuro-psiquiatr 2012; 50(1): 23-34. doi: https://doi.org/10.4067/S0717-92272012000100003

Middleton JW, Simpson GK, De Wolf A, Quirk R, Descallar J, & Cameron ID. Psychological Distress, Quality of Life, and Burden in Caregivers During Community Reintegration After Spinal Cord Injury. Arch Phys Med Rehabil 2014; 95(7): 1312-1319. doi: https://doi.org/10.1016/j.apmr.2014.03.017

Groeneveld, M. G., Vermeer, H. J., van IJzendoorn, M. H., & Linting, M. Caregivers' cortisol levels and perceived stress in home-based and center-based childcare. Early Child Res Q 2012; 27(1): 166-175. doi: https://doi.org/10.1016/j.ecresq.2011.05.003

Migerode F, Maes B, Buysse A, Brondeel R. Quality of life in adolescents with a disability and their parents: The mediating role of social support and resilience. J Dev Phys Disabil 2012; 24(5): 487-503. doi: https://doi.org/10.1007/s10882-012-9285-1

Chowdhury M, Benson BA. Deinstitutionalization and quality of life of individuals with intellectual disability: A review of the international literature. J Policy Pract Intellect Disabil 2011; 8(4): 256-265. doi: https://doi.org/10.1111/j.1741-1130.2011.00325.x

Zulueta, A. y Peralta, F. Percepciones de los padres acerca de la conducta auto determinada de sus hijos. Siglo Cero. Revista Española sobre Discapacidad Intelectual 2008; 39(1): 31-43.

Bourke Taylor H, Howie L, Law M. Impact of caring for a school aged child with a disability: Understanding mothers' perspectives. Aust Occup Ther J 2010; 57(2): 127-136. doi: https://doi.org/10.1111/j.1440-1630.2009.00817.x

Guo Yuan li, LIU Yanjin.Family functioning and depression in primary caregivers of stroke patients in China- Int J Community Based Nurs Midwifery 2015; 2(2): 184-189. doi: https://doi.org/10.1016/j.ijnss.2015.05.002

Guyard, A. et al. Measuring the concept of impact of childhood disability on parents: Validation of a multidimensional measurement in a cerebral palsy population. Int Rev Res Dev Disabil 2012; 33(5): 1594-1604. doi: https://doi.org/10.1016/j.ridd.2012.03.029

Organización Mundial de la Salud: Nota descriptiva de discapacidad y salud, Nov, 2016. disponible en: http://www.who.int/mediacentre/factsheets/fs352/es/

Urzúa M, Verdugo Alfonso M, Caqueo Urízar Alejandra. Calidad de vida: Una revisión teórica del concepto. Terapia psicológica 2012, 30(1): 61-71. doi: https://doi.org/10.4067/S0718-48082012000100006

Statistics

Statistics RUA

Published

15-01-2017

How to Cite

Yosela Verdugo, Z., Torres Valdivieso, C. H., & González, J. E. (2017). Quality of life in people with severe and very severe disability. Revista De Discapacidad, Clínica Y Neurociencias, 4(1), 37–46. https://doi.org/10.14198/DCN.2017.4.1.03

Issue

Section

Artículos